About My Subtitles
On the stereo: Brave by Sara Bareilles
In my bloodstream: The remnants of Ipilimumab (Yervoy) an immunotherapy drug for cancer and an experimental drug from Bristol Myers called Nivolumab.
Growing up, my family in Canada was small. No grandparents, no cousins, no uncles or aunts. My parents filled the void with music - music filled almost every non-working moment. My mom could sing. She had sung in a Glasgow band during the war, and until she died, she never missed an opportunity to share a song. Dad was a masterful musician, although it was not until I was in my early teens that he could finally afford his first used piano, his first since he left Scotland. He did buy an accordion in 1952, and he made do with that while he saved for the day when he could finally afford the piano he had long dreamed of owning. Together, my Mom and Dad gave me the gift of music. My house was always my private concert hall. I was introduced to every music genre from classical to country - and I still love them all. What a great gift. I will always remember the warmth and the peace and the melodies of our home in those very early days.
My Dad’s accordion. And no, I could not play it. |
As for the “In my bloodstream” subtitle, well, that’s the medical side. I am a man who has spent the last 25 plus years battling stage 4 melanoma. Drugs, radiation and surgeries have kept me living. My family and friends have given me a life. I will share which medical treatments I was involved with in this section. I hope it will help to give you a framework for the story being told.
Shower time. |
Who could have picked a better time? Between open wounds and skin grafts I was naked, cool and entertained by our television for a month. The wounds were gaping and I was not able to let even a blanket touch me for fear of blood stains, the possibility of infection and more importantly, pain. The only covering I had was a sheet for some warmth and whatever bit of modesty I had left and saran wrap to cover the wounds when I showered. The open wounds had to be kept dry until I returned for the operation to remove any residual cancer and sew me back together.
A friend of Kath’s called to see how I was recovering. Kath advised her of my condition, and in an hour she was at our door with food and, I would like to believe, an interest in my Adonis-like body, as damaged as it was. OK. Likely not. But I’m trying to maintain some self-confidence in a scarred old body that looks like an autopsy was performed prior to my death. How I haven't lost 20 pounds is beyond me!
Delusion is sometimes helpful when followed by the laughter of reality. Truthfully, I was not at my sexiest best. Have not been for a long time.
A friend of Kath’s called to see how I was recovering. Kath advised her of my condition, and in an hour she was at our door with food and, I would like to believe, an interest in my Adonis-like body, as damaged as it was. OK. Likely not. But I’m trying to maintain some self-confidence in a scarred old body that looks like an autopsy was performed prior to my death. How I haven't lost 20 pounds is beyond me!
Delusion is sometimes helpful when followed by the laughter of reality. Truthfully, I was not at my sexiest best. Have not been for a long time.
I do, however, still live the best life.
Adieu.
Adieu.
Looking good to me!
ReplyDeleteHaving been through 3 transplants and a dozen cancerous skin spots removed myself, I can appreciate your enormous struggles to find even the slightest sense of normalcy.
I'm having another mose proceedur tomorrow. When I heal in about a week, how about a round of golf?
Please give me a call.
otteau@gmail.com
612-201-8751